NIH Launches Web Portal To Facilitate Down Syndrome Research
February 3, 2015 in News
Details of Portal
The Web portal is part of NIH’s DS-Connect: The Down Syndrome Registry site, which contains de-identified data on patients with Down syndrome.
The new portal will allow researchers to examine patients’ health histories and other medical information, including:
- Diagnoses; and
Researchers also can apply for a higher level of access, which will allow them to:
- Identify patients for clinical trials;
- Perform customized searches of the data; and
- Propose survey questions.
Clinical study requests will be coordinated by the registry for patients who have indicated that they are willing to participate (Verel, MedCity News, 1/28).